misinformation to the Gibson Inquiry
Williams 6th July 2006
Having read the official Minutes
of the evidence presented on 18th April 2006 to the Gibson Parliamentary
Inquiry by Trish Taylor of the charity Action for ME (AfME) that are now
available on the Inquiry website http://www.erythos.com/gibsonenquiry/ , it is important to note the factual errors in
Ms Taylor’s evidence to the Committee:
- The UK Government officially
recognised ME as an organic disorder on 27th November 1987 (ie.
not in 2002 as stated in AfME’s presentation), and there is official
evidence of this: see “Time for a Reality Check at the UK Department of
Health?” dated 4th April 2004 at www.meactionuk.org.uk/Reality_Check.htm .
- It is misleading to state that
it was in 2003 that “the WHO UK Guide gave a unified neurological code to
CFS/ME” because this refers only to a Guide to Mental Health in Primary Care
produced by the Institute of Psychiatry in London (which was compelled to
issue an erratum after wrongly re-classifying “CFS/ME” as a mental
disorder), not to the ICD itself: it was in 1992 that “CFS” was included
by the WHO in Geneva in the ICD as a term by which ME was sometimes known,
and ME itself has been included in the ICD as a disorder of the nervous
system since 1969.
For a national charity that is
tasked with representing the best interests of those with ME not to get the
basic facts right on such an important occasion is a matter of concern.
It must also be noted that in the
Minutes referring to the evidence of the 25% ME Group (on page 11), there may
have been a typo by whoever wrote up the Minutes, because the correct date is
1969, not 1979.